Last updated: May, 2023
The expression "personal information" means information or an opinion about an identified individual, or an individual who is reasonably identifiable (directly or indirectly). This may include your name, address, telephone number, email address, online identifier (such as an IP address) and your profession or occupation.
Some personal information is also “sensitive information.” Sensitive information has the meaning given by the Privacy Act. Sensitive information is information about your racial or ethnic origin, your political opinion, your political association, your religious beliefs/affiliations, your philosophical beliefs, whether you are a member of a trade or professional association or trade union, your sexual orientation/practices, your criminal record or your health information (including genetic information or biometric information).
“Health information” is a type of both personal and sensitive information. It includes information or an opinion about:
We only collect personal information if it is necessary for one or more of our functions or activities. We may collect the following types of personal information:
Where the personal information is also sensitive information (including health information), we will only collect it with your prior consent.
Sometimes, we may receive personal information which we did not ask for (i.e. unsolicited information). If this occurs, within a reasonable period of time we will determine whether we could have collected the information by seeking it from you. If we determine that we could not have collected that information from you, we will destroy the information or de-identify it where it is lawful to do so.
We may also collect information from time to time that is not personal information because it does not identify you or any other individual. For example, we may collect anonymous answers to surveys or aggregated information about how people use our website and services.
We collect your personal information directly from you unless it is unreasonable or impracticable to do so. If we collect your personal information from someone other than you, we will take reasonable steps to ensure that you are or have been made aware of what information has been collected, and the purpose of that collection. When collecting personal information from you, we may collect it in ways including:
We will only collect and/or use your personal information (including health information) to the extent that this is necessary for one or more of the following activities:
We only collect such personal information that we need for these primary purposes or for other (secondary) purposes that are related to a primary purpose. If we hold personal information about you that was collected for a particular purpose (i.e. one of the purposes listed above, being the primary purpose), we will not use or disclose the information for another purpose (i.e. a secondary purpose) without your consent, unless you would reasonably expect us to use it for the secondary purpose, or it is required by law.
In relation to the use of your personal information to provide you with information about our programs and activities, you may at any time request us not to provide you with any direct marketing and fundraising communications or publications. We will provide you with a simple means to opt-out of receiving such correspondence from us.
You may elect to opt-out from receiving direct marketing information at any time, by contacting us at the contact details below or, in the case of electronic correspondence, by selecting any unsubscribe option.
In relation to sensitive information, we will not use or disclose this for the purpose of direct marketing unless you have expressly consented.
You have the right to not identify yourself, including the right to not provide us with your personal information.
If you do not provide us with the personal information described above, we may not be able to provide the requested services to you, either to the same standard or at all, and we may not be able to provide you with information about services that you may want, including information about related services.
Security risks are mitigated through Eugene’s commitment to de-identifying or destroying any personal information which is no longer required, where possible and permitted by law.
You should be aware when using our website that no data transmission over the Internet can be guaranteed as totally secure. Although we strive to protect such information, we do not warrant the security of any information that you transmit to us over the Internet (including through our website), and you do so at your own risk.
We may provide your personal information (including your health information), to:
Notwithstanding this, we will take reasonable steps to ensure that the receiving person or organisation is subject to a law, binding scheme or binding contract that provides substantially similar protection to the Privacy Act which you can access and enforce.
You have a right to seek access to, and correction of the personal information we hold about you.
You may request access to any personal information we hold about you at any time by contacting Eugene. Where we hold information that you are entitled access to, we will take reasonable steps to provide you with suitable means of accessing it.
There may be instances where we cannot grant you access to the personal information we hold. For example, we may need to refuse access if granting access would interfere with the privacy of others or if it would result in a breach of confidentiality. If that happens, we will give you written reasons for any refusal.
We will take reasonable steps to ensure that any personal information that we have collected is accurate, up-to-date and complete. We will also take reasonable steps to ensure that any personal information we use or disclose is accurate, up-to-date, complete, and relevant having regard to the purpose of the use or disclosure.
If you believe that personal information we hold about you is incorrect, incomplete or inaccurate, then you may request us to amend it. We will consider whether the information requires amendment. If we agree, we will take reasonable steps to correct the information held. In some circumstances where we correct or update a record, we may still require retention of the original record. We then will provide reasons for our decision in writing and add a note to the personal information stating your requested amendment.
If you believe that your privacy has been breached, please contact the Eugene Team (see details in section 13 below) and provide details of the incident so that we can investigate it.
We require any complaint to be made in writing first. We will then endeavour to acknowledge receipt of your complaint within 7 business days. If we are unable to resolve your complaint to your satisfaction, a complaint can also be made to the Office of the Australian Information Commissioner.
If you have an enquiries about:
We will treat your enquiry or complaint confidentially. One of our staff will contact you within a reasonable time after you have made contact with us to discuss your enquiry or complaint and outline options regarding how it may be dealt with. We will aim to ensure that any complaint is resolved in a timely and appropriate manner.
Our partners and research affiliates are located both in Australia and internationally. These currently include: